FAQ

The study team is interested in learning more about children’s abilities and quality of life a year after they leave the pediatric intensive care unit.

Answering our survey will not benefit you directly. We hope what we learn will help other people in the future.

We will be following up with you for one year after your child leaves the PICU. There will be 4 follow-up surveys to complete. The follow-up will take place over the phone and online using surveys at 1 month, 3 months, 6 months, and 12 months after they leave the PICU to check on how your child is doing. You will not have to come back to the hospital for this part of the study.

We will be following up with you for one year after your child leaves leave the PICU. We will contact you 2 weeks after your child is released from the PICU to confirm that your contact information is correct.

There are then 4 follow-up surveys. The follow-up will take place over the phone and online via surveys at 1 month, 3 months, 6 months, and 12 months after they leave the PICU to check on how your child is doing. You will not have to come back to the hospital.

We can help you to complete the study follow-up surveys over the phone. If you have email, you can complete the surveys anywhere that you can access email.

For the time that your child is in the hospital and one year after.

There is no difference. Your child will receive normal care for their condition.

If you move, we ask that you please contact the ASCEND study team at ascend-study@umich.edu or 734-845-5035 to let them know your new address and contact information.

The study results that are published will be about the group of subjects in the study, not individual subjects.

The study is paid for by the National Institutes of Health, National Heart Lung Blood Institute (NIH-NHLBI), funded by the Department of Health and Human Services (DHHS).

No.

No.

No.

If you complete all of the surveys, you will receive a total of $50 in gift cards. 

There is minimal risk for participating in this study. 

No, you do not have to participate, and no one will be upset if you choose not to.

No.

Call the ASCEND study team at 1-734-855-5053 and the study team will immediately contact your study lead at your hospital.

Your child was selected because they are the right age and have the type of illness in their lungs that we are studying and are on ECMO to help with their illness. Your child’s doctor believes that they will be a good candidate.

You can change your mind and stop being in the study at any time. Please tell your child’s doctor/care team or call the study team at 734-845-5053.

The study keeps your child’s medical information, like dates, the name of your child’s illness, and medication your child receives.

Only you, your child, your child’s study team in the hospital, and the study team at the University of Michigan will know that your child was in this study.

Your information will not be shared with anyone outside of the study.